Aaaaand We’re Off!

Kicking some Cancer Ass

This party has officially started. And at this writing, I am dancing with the devil. The Red Devil, that is, a potent chemotherapy drug that goes in red, comes out red . After a bag of that, I get pumped with Taxotere, another super-duper strong drug with known side effects that I hope to manage with prevention. I started with an anti-nausea drip, and it seems to have helped.

Getting my port

Tuesday my port was installed. Why in  the absolute hell were we told to be at the hospital at 5:15 am to wait for a 9:00 surgery? Beats me. I’m just grateful for the wooly-warm blanket for the pre-op room that was set at, like 50 degrees F and the compression bandages and booties that wrapped my legs nice and tight.

The procedure was one-hour and a piece of cake once my twighlight drip kicked in, the only discomfort was the need to elevate my chest by ramming the equivalent of a half-moon-shaped wheel-barrow tire under my upper-back. Thank god they immediately inserted a muscle relaxant/pain killer IV as soon as I woke up. I’m still sore.You can also hop over this imp source to know how to get rid off muscle pain.

The next day, (I am now a day behind…) my new Frankenstonian appendage sticking out of my chest was angry red and very swollen. So angry, in fact, Dra. Cuevas suggested we wait a week for chemo to begin. HA! Hell to the NO!!! I want to get this party started, the sooner the better, for fuck’s sake!

Frankenstein Port

The Red Devil

So the IV went into my skinny little wrist once a suitable vein was located, and the next four-hours was really kind of anti-climactic. Jeff was by my side the whole time, except for the hour or so he escaped to the grocery store. Jeff hates to shop. He’s such a good boy!

For five consecutive days following chemo, Jeff gets to shoot me up with a white-blood cell booster to keep the numbers up. Without the shots, I am much more susceptable to infection, and worse.  Five days’s you ask? Well, yes. We could have opted for a single shot, but with our approach, we are paying $500 USD total per round following each round of chemo, as compared to $2000 USD for the single round following each chemo round.  (That’s gonna save us $9000 in the long run for me to be a pincushion) . As our “catastraophic” insurance policy does not cover any breast cancer issues (I know, right?) our out-of pocket expenses are 100%. We rationalized that with the savings, we could rent a beater car to get us back and forth to Dr’s appt’s, etc.  Pictures coming. A 4-on the floor VW bug.

Before  we left El Gato (at 4:45am), we had a private little smudging ceremony, fanning the flames of sage throughout the boat while reciting a blessing to cleanse the space and protect our home, to heal, bring strength and peace. Lovely, really. This experience has already brought me an inner peace and acceptance of things I cannot change, helping to rid me of long-held resentments and anger. As I’ve said before, a brilliant and beautiful therapist is helping me along on this journey. Plus next week I will begin acupuncture and other holistic and nutritional methods.

So with the help and support of this tribe of mine that grows by the day, I feel confident. I feel grateful. I feel loved.

Thank you all, and until next time,

No Pasa Nada

 

 

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Aaaaand We’re Off! — 25 Comments

  1. Thanks for the update. Cheering for ya girl! Nausea is real but I’ve never used my anti-nausea meds; got candied ginger from Trader Joes thats great for it and CBD tinture for appetite. Its the fatigue that is worse so far. Starting my 3rd round of chemo and with you in spirit all the way. Are you in the marina at La Cruz, or where?

    • I’ve got the candied ginger as well as cbd/thc gummies. So sorry we are having to share this experience, but sharing helps. I am betting on your regained health and spirit to return soon.
      We r in Paradise Village. Where r you? Thinking warm thoughts of you, my friend.

      • So glad you have things to help that can keep you from taking more pills. Anything you come across that works for you please let me know, I’ll do same (like for the hair loss, the boat looks like I have a sheading golden retriever stashed aboard, Jajaja) Love Paradise village, is Dick still running things? Every time I tie up there new shops and cantinas have popped up in the area, its great. It used to be out in the boonies so you just hung around the resort or bussed to town. Love to dingy around the mangroves looking for crocs and drinking beer. Have seen some small ones there. Just recalling good times there has me smiling now (still like La Cruz best, free anchorage is sweet). I’m in Morro Bay CA but treatments and Dr.s are in nearby cities. Let me know if its better if I pm with you on Fb. Want to keep in touch, love you guys and already looking forward to sharing a cold one under Mexican skies. Salud my friend

  2. Keep an eye on that port, looks nasty ( mine never looked that bad ). Check with dr also on acupuncture, remember you are highly susceptible to infection, not sure even little thin needle holes would be advised by dr. I personally would not take the chance. Wishing you well…Rock on Pink sister!

    • Thanks, Pamela, I went back to my surgeon today, he said looked like it bled underneath and to keep up the antibiotics and pain relief. No signs of infection, but will go back if needed. I will ask about the acupuncture and may decide reiki or acupressure instead. XO

  3. Girl, this will become routine, as bad as I hate to say it. It’s a bump in your big, damn, happy life. Soon you will go on your merry way, my precious friend! Your attitude is, as always, just great. Love ya.

    • a.nice thought, but I hear cancer really changes you, hopefully for the better..maybe I’ll be more accepting, hold less.resentment, etc.but even tho you might look the same, you are changed forever.

  4. Sweetness, it is all a fucking learning experience. YOU are teaching ME. Love and light and thanks to you. Grateful to know you and thrilled that you are sharing. ABRAZOS

  5. I am glad you’re documenting your experience, I wish I had kept a journal of my treatment when I had to go through this bullshit. This blog will doubtlessly help others in the future. I will be sharing this with anyone I know, that may need an unvarnished heads up on what to expect with cancer treatment.

    You have the right mindset! Now take those sweet boots and use them to kick cancer’s teeth down it’s fucking throat.

  6. You are a writer and a fighter that’s for sure.
    Lots if love & healing g sent your way my dear friend xx

  7. Good on ya Jules! we’re here behind you…
    Feel ALL the feelings…and yes…there is always so much to learn. I am learning from YOU, right now! so many things…you inspire me.
    xoxox

  8. So glad you got those ass-kicking-cowboy-boots! I really appreciate you sharing your experience – it can’t be easy. Sending you peace and love.

  9. Wowsome, Wowsome—such strength and courage Ms Julia. Have been thinking of you daily since learning of your soon to be non-cancer discovery. Every time one of those quick flying thoughts flit across my screen, there’s the immediate thought/recognition of “All is well”, and in every sense that “WELL” conveys. You are that and so much more! Yes.
    Abrazos~Soledad

  10. Courage and strength occasionally take flight, leaving me immobilized and numb or plain scared shitless. But there is a reason, a reason it’s me. Still trying to figure that one out. It will come with time and adjustment to this new life.