WTAF??!!

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Well, What can I say? This has been a week. A week from HELL. Actually this whole fucking month may as well be put into the amnesia barrel and incinerated.

A few weeks ago I noticed a sore in the same spot that I had the horrible, awful, dreaded Mycobacterium Abcessus infection that I contracted five years ago after my mastectomy. It took 18 months of a cocktail of 3 antibiotics in addition to regular debridements to get it controlled (it never goes totally away). Those strong antibiotics seriously damaged my hearing and left me with permanent neuropathy in my feet. Thanks to Costco hearing aids and box-toed shoes, it’s managable. Yes, I feel like I should be 80 years old, but it didn’t break my spirit nor my passion for life.

So after 2 visits to different infectologists (one was clueless), ultrasounds and other tests, my oncologist told me to prep for surgery in three days to remove a mass that showed up in my (non-cancer) armpit.

Well, I’m just not happy about that at all, especially since I have been diligent about regular, 4/x yearly oncology appointments, in addition to having a big hiking trip planned for November. But, one’s gotta do what keeps one healthy, and I NEVER want to go through the same shit again.

HEre we go!!

Melissa, my dear friend who has hung with me through both hospital stays, was my ears that morning. I didn’t wear my hearing aides, and with the medical masks, lip reading was not an option for me, so every time a nurse, cashier or aide spoke to me, she had to relay it all. Thanks, Melissa.

Oh, boy! Jello!!!

Fast forward to now. I woke up in the hospital and learned that ALL of my lymph nodes had been removed! That was never even suggested to me. When I had BC surgery five years ago, about half of my lymph nodes were removed, and I had tons of problems with lymphedema and post-surgical pain that I still suffer.

My test results should be back late this week or early next, and I’ll just go from there. Like in my older blog posts where I chronicled my “journey” (god, I hate that word. No journey should suck like that…) OK, gonna just say my ordeal. I will continue to update WTF is going on.

I have a great “team” of friends that are helping me out with dog walks, food, comfortable shirts and laughs, as well as a wound care doc that comes to change my dressings. So, I’m good there. Thanks, guys!!!

In the meantime, I am doing all the things I can to prevent lymphedema, and really hoping for some sort of good news resolution to this latest hiccup.

I appreciate all good Juju, light, prayers, whatever ya got. Throw it at me, baby!!!

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WTAF??!! — 47 Comments

  1. Ugh! So so sorry to hear this Jules. You must be super human after all you have endured. I’m sure you will kick butt again. Sending love and prayers your way.

  2. So sorry. Wish we were there to help out. So just sending good thoughts. Yes, you are fucking strong, but I know it is fucking hard. XXOO

      • I soooo love you! You have been through it, but you keep your sense of humor which makes me know you are going to be ok. Wish we didn’t live so far away because you know I’d be at your side constantly. Love you❤️

        • Poo, I love you, too. I miss you dearly but know we are together in spirit, always.

  3. Well, damn. That’s an unexpected turn. Fingers crossed on the results. So happy you are receiving such good care. XO

  4. For fucks sake Jules!!! So sorry you’re having to endure this shit! Sending healing juju and strength to get thru this bullshit!

  5. That is so scary. 😳 It’s just something that always hangs over us. I’m so sorry and truly know what you are going through. I had a very scary dark three months recently. When all was said and done, I felt reborn. Wishing you the same my BC sister! Keeping you in my thoughts. ❣️💐❣️

    • Thank you, Sister. I wish we were closer to commiserate (and play cards) together. W will both be fine!! Love you.

  6. Gawd, you have soooo many friends who love and care about you!!! Meanwhile, yep it sucks, but hopefully you’ll be back to your ole’ nasty self soon.
    “I AM WOMAN, HEAR ME FKNG ROAR”!!
    Love, light, laughter and healing juju your way!!! Ps…must say you look so cute in that blue bonnet!!🥸🥸🥸🥸🥸🥸🥸🥸🥸🥸🥸🥸🥸🥸🥸🥸🤩🥸🥸

    • Thanks, Patsy. You are going through your own shit right now. I will send you tons o good stuff, as well.

  7. Hola, mi amiga… Sergio and I send huge hugs filled with Love and comfort through this latest challenge… but, you ARE a survivor, and if I wasn’t dealing with my own issues after the jaw surgery (minor in comparison), we would be there to join the support team for you and the dogs. All of Love… 🤗💜

    • Thanks, Gary. Glad you are (hopefully) mending. Life takes it’s turns, but I hope the turn is in the right direction!!

  8. My Queen, you are a great inspiration to me with your badass attitude. I’m going in tomorrow for surgical consult for the lump I found in my left breast. Mammogram did not pick it up. I did. So did ultrasound and needle biopsy. I am wearing hearing devices too. Get the good ones with Bluetooth and nightly charging. You will love them. Sending love ❤️ love ❤️

    • I am sending you nothing but the BEST, friend!!!! Mammogram didn’t pick up my BC either, had Ultrasound and Biopsy as well, which is what detected it. I now recommend Ultrasounds to all my gf’s. And yes, I have the good hearing aids, and love listening to music through them!! Please let me know how your tests go!

  9. 🙏🏽🧚🏼‍♂️🙏🏽🧚🏼‍♂️🙏🏽🧚🏼‍♂️🙏🏽
    Fuckery … so sorry to learn Jules ..
    Keep that warrior spirit alive and kicking.
    Big love gf 🩷🌸

  10. Sending lots of positive thoughts that your constant fighting will slay the beast. You are a survivor, Julie! Love and hugs. Pamela

  11. Love & Hugs from me & VTM.
    Just like all the other crap you’ve gone thru, you’re gonna get through this like a samurai with a SHARP BLADE!
    Miss you MUCHO!

    PS. This is junk email
    DONT USE

  12. This really sucks. Here’s hoping for a positive outcome. I’m glad you have such great support.

  13. Crap! Stop being so good at making lemonade and maybe she’ll stop hurling lemons at you? Oh, man…. I love you Jules. Hurling Juju your way.

  14. Dang it !!! I’m sorry you have to go through this ordeal. However, I know you are resilient and will be better on the other side of this mess. Sending you love, light and healing energies along with boatload of patience.

    • Thanks, Nick. I am staying as positive as possible. On another note, Looks like your doggy was the perfect choice for your family!